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Friday, November 12, 2021

We interrupt this chronic crisis to bring you: A Birthday

 


Today we celebrate 61 years of Scott. And in honor of that I, Jennifer, who have been silent for a bit over two months, am sneaking back onto this forum while he runs an errand to invite you to celebrate with me. Because this birthday finds him (us) in an unexpected place with an unclear plan, or at least more realistically aware that every birthday finds us in places that are complicated combinations of our choices and life, and we never can plan on the next one! So today please join me in a bit of joy. 

Today's birthday has been joyful, largely due to the presence of our second-born who by God's mercy was able to walk through every step of the first two weeks of this near-death blip with us, and also to come back over this Veteran's Day long weekend. He's been a stalwart and a gem. It's also a glorious Fall day in West Virginia, for a father-son bike ride and polar-plunge river dip, for sunny rocking on the front porch with guitar-accompanied singing truth, for making food and talking. But mostly, today is joyful because it provides a frame in which to gather thankfulness for Scott. It's not the first time he's been instrumental in saving my life but definitely the time that death has come closest. I am thankful for his presence, recognition of the situation, pushing for the helicopter extraction and then sticking by me in the complicated journey of care. He's been constant through those four days on the ventilator, five in the ICU, ten in the main hospital and another week in the rehab.  Then another seven weeks of plugging along at our farm taking me to umpteen appointments, managing both of our jobs at distance alone, shopping, cooking, and on an on. I am trying to be aware of just how drastically my fall has knocked into dozens of other people's lives and plans, but no one's as hard as Scott's. So On this birthday, I am thankful for the companion God has given me (41 years of friendship, 34 years of marriage), and specifically for his capacity to pivot on this unplanned sojourn as we wait to see what it means for our lives.

Our mantra of late has been the paradox of gratefulness and grief. I'm grateful to be alive and in recovery, yet also grieving for the loss of so much of life for now. In the same way on this birthday I'm grateful for Scott's wisdom, energy, faith, commitment, kindness, care for me, capacity to stay involved in our own struggle and those of our team and Area and friends . . . but also grieving that he has to be away from a life that we spent 28 years investing in, the human beings that fill his heart, the hands-on work that brings him satisfaction. Two birthdays ago we got Bwindi in Kampala; last year we went to a Safari Lodge for a lovely treat of a time together. This year we've been boosted for COVID at Walgreens and watched the Veteran's day parade, and are treasuring the weekend with our son and chatting with the rest of the family. We are  marveling that we can be here, even making his mom's traditional carrot cake (without Ruth 61 years ago none of this story would be possible!).

After today, back to PT and zoom calls and the slog of survival, back to hoping and praying and waiting. I'm aware that my brain is not to be fully trusted (going to have this read by someone before posting) and everything takes more energy than it should. But for today, I'm glad that I'm not in this crazy situation alone, that God gave Scott 61 years and counting, and hoping it is many more. He's done a great job of recruiting prayer for me, which is definitely my lifeline. Today pray for him, to also meet God in the mess, to be filled with faith, hope, and love as we recited in our wedding vows from 1 Cor 13, to accept the new normals with grace and find good in his next year of life. And to have a HAPPY BIRTHDAY!
























































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































































Tuesday, November 09, 2021

Post Ophthalmology Visit Follow-up Report


Jennifer was evaluated by a Neuro-Ophthalmologist at WVU today, an eye doctor who has done sub-specialty training in the nerves of the eye. 

The doctor who evaluated her today was a little older than us (read: old) and said that he has seen "many" Cranial Nerve III injuries, but only two related to bicycle accidents. In general, he said that a traumatic CNIII injury involves "massive forces".  Most of his patients with a traumatic CNIII injury have been involved in motor vehicle accidents or similar high velocity events (he did mention one related to a baseball bat to the head). 

Overall, he expressed extreme gratitude for Jennifer's recovery and, I think, it's safe to say that most of his patients have not experienced the degree of recovery which she has at the 2 month mark. That said, he said it is now a waiting game. Like we have heard soooo many times now, the recovery time line is about 6 months. Where she lands functionally at the six month mark is probably where she will be permanently - though there may be slight incremental improvement up to the one year mark.

Jennifer is not wearing a patch much at all now. And the doctor encouraged her to continue leave the patch off - and use it only when she is experiencing eye fatigue which is causing more double vision. She has little double vision looking straight ahead at distance. It's only with downward and upward vision that she is experiencing some double vision. He said that at this point we can pretty much rule out any need for corrective (strabismus-like) surgery (Hallelujah!).  There is some slight possible that she could benefit from "prism glasses" (little wedges of glass in the eyeglasses that bend the light and bring two images into one)--but that would not be decided until the six month mark.

Her right pupil continues to be dilated more than the left and her lens doesn't "accommodate" as well on the right which makes reading slightly more difficult with that eye.  But at distance (with her glasses) she has 20/20 in her right (bad) eye--but than her left eye which is 20/25.

So...she has a follow-up appointment in 2 months (late January to assess her progress).  Until then we continue with her "Brain (MIND) diet" (read: Mediterranean diet), her independent physical therapy, lots of rest/sleep, general exercise--and prayer.

Thanks to all for prayers and all the generally encouraging messages she continues to receive.




Sunday, October 31, 2021

Seeing

 


More progress this week...

- The biggest answer to prayer is that after nearly six weeks, Jennifer's diarrhea has finally resolved.  Sorry to lead off the prayer update with diarrhea, but that's the reality of the struggle.  Very thankful.

- On Friday, Jennifer had her Final Exam so-to-speak at the Physical Therapy unit in Bridgeport.  Her demonstrable improvement on so many different levels (improved gait, strength, balance, flexibility) qualified her for discharge from the formal PT program.  So, that means no more driving an hour to Bridgeport twice a week.  Yay.  She will continue to work hard here at home with her own independent program in order to multiply the gains she's made, but we won't have to travel or pay for more therapy.  A shout out to United Rehab Physical Therapy staff--they were great.  Expert professionals who could see things we couldn't see and then guide her with a regimen towards recovery.

- I mentioned an Eye appointment scheduled for this week...that was rescheduled to Nov 8.  On the eye, Jennifer said to me this week..."look at my pupil, I think it is getting smaller."  Indeed, it's true. And she's having less and less double vision with far vision--though with the slightest downward gaze, the double vision is apparent.  Jennifer also finished reading Perelandra (after reading Out of the Silent Planet) this week.  Some of this reading is done patched, some done unpatched.  But I cannot emphasize enough, how thankful we are that she is able to read. We don't take this lightly. This was not a given eight weeks ago. And we were talking about it yesterday--how reading is central to soooo much of life. So, again, pausing to give thanks.

- She is walking in the woods more and more. Walked about 3.5 miles yesterday. She has an app on her phone which helps her identify trees. It reminds me of the way the Physical Therapists watch Jennifer walk and then comment about which joint is weak or inflexible.  They "see" things of which we are unaware.  And now, as we walk in the woods, we are seeing with new eyes. We look up into a big meadow above our house every morning when we wake up and throughout the day. As we walked by one of the biggest trees this week at the top of the meadow, we noticed that it's a Shagbark Hickory (of course, we live on Hickory Flat Road). It's always been there, but we never "saw" it before. 

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Our Team in Bundibugyo continues to fragment for this season. The Forrests are en route to San Diego for a 5 month Home Assignment as they transition from being 2-year Short Termers to 5-year Long-termers.  Thankful they decided to commit to a longer term of service.  They will reconnect with supporters to share their vision for continuing service in Bundibugyo. Can't wait for their return!

The McClures are halfway through their 4-month Home Assignment and will return to Uganda in January just as Christ School re-opens.  We are working together with the school's Leadership Team to plan a budget for next year, plan for recruitment and selection of new students for the S1 and S5 classes, and participate in a national re-registration process undergoing for all private schools (I suspect they are trying to assess how many private schools have survived the long Covid shutdown).  Please keep praying for Christ School, too.



Monday, October 25, 2021

mid-week bonus

On 9/11, five days after Jennifer's accident, one of the former teachers of our kids in Bundibugyo (Michelle Lee) sent me a link to a song which she and her kids learned at a YoungLives camp last summer.  I wept while listening to this song over and over and over...


Take a couple of minutes and listen to this beautiful song HERE...

Jennifer has been playing this on the piano this week --which is a spine-tingling experience.